This was a web-based study to look at the impact of neurological impairments from the perspectives of people with MS and their “care partners” [“I don’t like this word”].
The study included 1011 people with MS and 317 care partners.
- Among MS’ers, 41% reported having difficulty walking, including 13% with inability to walk at least twice a week.
- Of those with difficulty walking, 70% said it was the most challenging aspect of having MS.
- Of those with inability to walk at least twice a week, 74% said it disrupted their daily lives.
- Only 34% of people with MS with difficulty walking were employed.
- Communication between people with MS and neurologists regarding difficulty walking was suboptimal; 39% of all people with MS said they never or rarely discussed it with their doctor.
- A significant percentages of all care partners experienced reduced quality of life and socioeconomic status in association with caring for a person with MS.
Conclusions: Difficulty walking is a common impairment in people with MS, with adverse effects on the quality of life of MS’ers and their care partners.
Larocca NG. Impact of walking impairment in multiple sclerosis: perspectives of patients and care partners. Patient. 2011 Sep 1;4(3):189-201.
“This study was sponsored by Acorda Therapeutics, the company that markets Fampridine in the US.”
“The study may be biased towards more disabled MS’ers.”
“These figures are a startling reminder of how disabling MS is and how disconnected neurologists are from these problems.”