Survey results: disease-activity free status

“Are yiou surprised with these results? I am not. They do indicate, however, that we have a lot of work to do to get this concept accepted by the wider clinical community and more importantly into clinical practice. Let’s hope the community is ready for the concept. It is very important for MSers; at least those with RRMS.”

2 thoughts on “Survey results: disease-activity free status”

  1. why would any doctor not want their patients to free of disease activity? Surely you start patients on a first line thrapy and them monitor them e.g. MRI, clinical examination. If their is disease activity e.g. MRI shos inflammation, you go for the next line of therapies? It's not rocket science. Not sure why the field of neurology has to act differently from normal medicine. If you suffered a serious wound the docotr would stitch you up / bandage you. If bleeding continued, the doctor would add another stitch etc. It's bad enough having MS. The worst part is that the medics don't share your aim of minimising damage to the CNS. If someone if newly diagnosed, they should be offered the choice of a highly effective treatment e.g. fingolimod or alemtuzumab. Why are we offered ineffective treatments like copaxone? Does this happenif you have got cancer e.g..we'll start you on an ineffective treatment..if the cancer spreads we might go for a more effective treatment. Why do neuros treat their patients differently. You think with MND and Huntingdons, that neuros would be thrilled to be able to help some of their patients i.e those with RRMS. Why offer them the least effective treatments first? Please don't blame NICE or the licensing. As a group, neuros should be pushing the boundaries and maximing the treatment outcomes for their patients!

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