Editorial. Sticker shock. Nature Medicine 19, 653 (2013) doi:10.1038/nm.3244 Published online 06 June 2013
…. A recent plea by oncologists condemning inflated prices for some cancer drugs has ignited a debate on this topic between clinicians and pharmaceutical companies and highlights the need for a broader assessment of drug valuation…..
…… In a recent commentary published in the journal Blood, an international group of more than 100 clinicians and scientists criticized pharmaceutical companies that market costly cancer drugs to treat chronic myeloid leukemia (CML). The authors argued that the prices of six CML drugs have reached unsustainable levels that jeopardize patients’ treatments and economic well-being…..
…. In response to this disparity, some regulatory agencies and insurance companies have refused to approve payment for certain high-cost treatments. In the UK, the National Institute for Health and Care Excellence (NICE) evaluates the cost-effectiveness of drugs that have been approved by the European Medicines Agency (EMA) and issues funding guidance to the National Health Service (NHS). The NHS covers the cost of drugs that NICE approves for a given disease…
Multiple Sclerosis Research: Drug Pricing: Pharma Cartels?
26 Sep 2012
If the price of getting closer to a cure for MS or an even more effective treatment regmine is high drug costs then so be it. If Pharma can’t make a hefty profit on MS drugs then they will stop developing them and that would be …
Rip-off prices for drugs set by ‘profiteering’ Big Pharma giants
30 Apr 2013
A group of more than 100 leading cancer physicians from around the world, including nine from the UK, accuse the drug industry of “profiteering” – making a profit by unethical methods such as by raising the cost of grain after …
Multiple Sclerosis Research: Is teriflunomide overpriced?
25 Sep 2012
“Not everyone pays the same price for drugs, of course, and rules that underlie various pricing levels in the US (Medicare, commercial, individual), added to negotiated rebates, patient assistance programs, and different rules …
The Truly Staggering Cost Of Inventing New Drugs – Multiple …
11 Feb 2012
Take these numbers and mousedoctor’s “drug the game” together and it explains drug pricing. Since it’s so difficult to get a new drug to market the only consideration is ‘How high can we price it?’ They charge whatever the …
Multiple Sclerosis Research: Average time-line for MS drug …
02 Nov 2011
The down side is that the era of cheap or affordable drugs is gone. Do you find this alarming?” Source: DiMasi et al. The price of innovation: new estimates of drug development costs. J Health Econ. 2003 Mar;22(2):151-85.
4 thoughts on “Déjà vu: DMTs are simply too expensive”
Sounds like we need a bit of radical campaigning – but when dealing with difficulties in everyday life, this becomes low down on the list of priorities, sadly
I agree; my problem is that I only have 24 hours in my day and I already spend most of them doing MS-related activities. I think we need to crowd source this one. Any volunteers?
I know this comment hits the ethical minefield of economic value versus universality of treatment (I made a similar comment on one of the blog’s questionnaires), but I will use myself as a case that shows the stupidity of this policy. I am a late 30s degree educated female with onset of symptoms and RRMS diagnosis within the past 20 months. I will *probably* be looking at increased disability over the next 15 years leading to a *probable* decrease in working hours and *possibly* unemployment as a result of this effing disease. I have been a higher-rate tax-payer for 15 years and if I did not have MS, I would expect my working life to continue for another 25-30 years as a higher- / highest-rate tax-payer. By withholding efficacious treatment, NICE is preventing me from being a contributor to society and making me a burden. To be perfectly frank, although my brain and CNS are apparently not very damaged and my ongoing symptoms are light in comparison with others, I am already tired of this disease and have plans to remove myself from this world when I have had enough (not imminently – despite this bout of depression I know there are currently far more positives than negatives in my life).I have education, a job, a comfortable life, wonderful friends and the most loving fiancé and family in the world, so if NICE’s decisions are making me feel like this now, I dread to think how I’ll be feeling in the years to come or how I would be feeling if I didn’t have the support I do.We all know that the NHS is under a burden impossible to have been foreseen by Bevan, but in the same month that the TaxPayers Alliance has identified £120 billion in government waste, the report that unlike every other G8 country we are the ONLY country paying the target rate of foreign aid and a report by a senior oncologist that a not insignificant number of foreigners are travelling to the UK for expensive NHS treatment (especially maternity, oncology, cardiology and renal care), I am absolutely livid that there is such a ban on treatment that might make my life easier.I was about to apologise for the self-indulgent rant, but if we can’t say it here, where can we say it? It is a vast understatement to say that I’m feeling somewhat frustrated at the moment.
Not a self-indulgent rant at all, a very good post. Believe me, we share your frustrations and are doing everything in our power to change things.