MS Brain Health newsletter – June 2018

Dear supporters 
Over the past month, we have presented MS Brain Health research at major conferences in Europe, the USA and Australia and learned more about the experiences of people living with MS in the USA. It has been great to meet some of you in person at these events, and we are pleased to welcome many new supporters!
Consensus standards presented at EAN 2018 
International consensus standards for the timing of key stages in MS care were presented in our focused workshop, Brain Health in MS: a catalyst for a new approach to management, at EAN 2018 in Lisbon this month. Over 150 attendees joined this interactive workshop and gave their responses to the new quality standards.
Professor Gavin Giovannoni, Dr Gisela Kobelt and Professor Jeremy Hobart gave presentations and participated in a lively Q&A session. “The standards should not be used as a means to criticize MS teams, but instead provide an opportunity for every MS clinic to strive for the highest level of care,” stressed Professor Hobart.
Read more
Latest MS Brain Health presentations available to download
Professional organizations in Australasia endorse the policy report
MS Nurses Australasia and the MS Neurology subspecialty group of the Australian and New Zealand Association of Neurologists have become the latest professional groups to officially endorse the policy report, Brain health: time matters in multiple sclerosis. We’re delighted that these groups have joined our other 46 endorsers.
Revisions to criteria used in the diagnosis of MS
Motivated by recent technological advances and new data on the diagnosis of MS, experts have refined the 2010 McDonald criteria – the widely used diagnostic criteria for MS. The experts hope that the updated criteria will facilitate early and accurate diagnosis of MS.
Read more
New! Dutch translations of short guides
We are delighted to announce that our guide for people with MS and nursing resource are now available in Dutch. Follow the links above, click ‘Download’ and select your language.

Please do share these resources with your Dutch-speaking colleagues and friends.

You can follow us on Twitter @MSBrainHealth to keep up with the latest news. Thank you for your continuing support!
Gavin Giovannoni, MD

Professor of Neurology and Chair of the MS Brain Health Steering Committee

On behalf of the MS Brain Health Steering Committee: Gavin Giovannoni, Peer Baneke, Helmut Butzkueven, Jodi Haartsen, Jeremy Hobart, Gisela Kobelt, Christoph Thalheim, Tony Traboulsee, Tim Vollmer and Tjalf Ziemssen
 

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MS Brain Health activities and supporting materials are funded by grants from Actelion, Celgene and Sanofi Genzyme and by educational grants from Biogen, F. Hoffmann-La Roche and Merck KGaA, all of whom have no influence on the content.

Editorial and administrative support for the MS Brain Health initiative is provided by Oxford Health Policy Forum, a not-for-profit community interest company registered in England and Wales (registration number: 10475240).

2 thoughts on “MS Brain Health newsletter – June 2018”

  1. You forget to disclosed this presentarion you did for MerckMERCK TALK – Multiple Sclerosis 10:15 – 10:30 Scientific TheatrePresentationsSelective Immune Reconstitution Therapy in the Multiple Sclerosis treatment paradigmGavin Giovannoni, London, United Kingdomhttps://www.ean.org/lisbon2018/Scientific-Programme.3370.0.html

  2. ….And Roche….Patients' ChoiceHighlightRare DiseaseOverarching Theme Day 1 (16.06.2018)CDSCareer Development Session 108:30 – 10:00 Room OsloEtiological investigation of disease: case-control studiesCWCase-based Workshop 108:30 – 10:00 Room CbWEAN/EAPC: End-of-life care for neurological patientsFWFocused Workshop 108:30 – 10:00 Auditorium IIIBrain health in multiple sclerosis: a catalyst for a new approach to managementFWFocused Workshop 208:30 – 10:00 Auditorium VBiomarkers of neuromuscular disordersFWFocused Workshop 308:30 – 10:00 Room LisbonThe importance of brain network reorganisation in old age and for successful rehabilitation after strokeFWFocused Workshop 408:30 – 10:00 Room CopenhagenAbility to drive in neurological disordersFWFocused Workshop 508:30 – 10:00 Room BerlinOverarching theme: Familial amyloid polyneuropathy: phenotype, genetics, treatmentIaSInteractive Session 108:30 – 10:00 Auditorium VIEAN/ILAE-CEA: Classification of the epilepsies: Old wine in new skins?SpSSpecial Session 1208:30 – 10:00 Room Amsterdam25 Years of European Journal of Neurology – History, future and how to prepare your paper for publication3DS3-Days Satellite Session 110:00 – 10:30 Room 0.01CELGENE – The importance of real world evidence generation in Multiple SclerosisFPForum Programmes 110:15 – 10:30 Scientific TheatreMERCK TALK – Multiple SclerosisPresentationsSelective Immune Reconstitution Therapy in the Multiple Sclerosis treatment paradigmGavin Giovannoni, London, United KingdomSSymposium 110:30 – 12:30 Auditorium IEAN/MDS-ES: Tauopathies: pathophysiology, clinical features and experimental therapiesSSymposium 210:30 – 12:30 Auditorium VIDiagnosing genetic epilepsiesSSymposium 310:30 – 12:30 Auditorium VEAN/ESO: Cerebral small vessel disease – recent advances and clinical implicationsSSymposium 410:30 – 12:30 Auditorium VIIIEAN/EAPC: Palliative care and neurologySSymposium 910:30 – 12:30 Room BerlinEAN/ECTRIMS: Therapeutic challenges in progressive multiple sclerosisSTScientific Theatre 110:30 – 11:00European Pain FederationSTScientific Theatre 211:30 – 12:00EAN grants and other possibilitiesSTScientific Theatre 312:30 – 13:00eBook on neurological examinationSaSSatellite Symposium 0213:00 – 14:30 Auditorium VIROCHE – Redefining the management of relapsing Multiple Sclerosis & primary progressive Multiple SclerosisChairpersonGavin Giovannoni, London, United KingdomPresentationsWelcome and introductionGavin Giovannoni, London, United KingdomSuppressing disease activity and progression in relapsing Multiple Sclerosis and primary progressive Multiple SclerosisGavin Giovannoni, London, United KingdomOcrelizumab safety across relapsing Multiple Sclerosis and primary progressive Multiple SclerosisRalf Gold, Bochum, GermanyIncorporating Ocrelizumab into clinical practiceAaron Boster, Ohio, United StatesQuestions & AnswersAll faculty, ,ClosureGavin Giovannoni, London, United Kingdom

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