Tag: Twitter

In my inbox this morning there were several emails from people with MS asking the same questions. What should I do; self-isolate or continue as is? Should I stop my DMT or continue it? Am I at increased risk of COVID-19 or not? If I get COVID-19 am I at risk of developing serious disease? Should I purchase a ventilator? I have symptoms of COVID-19 what should I do? Are there any patients with MS who have or have had COVID-19?

I am now creating a template email response directing them to my COVID-19 & MS microsite and saying if after reading the contents this doesn’t answer your question please ask your question(s) using the online portal so that when I make an attempt to answer it everyone else can learn from it.

There appears to be an increasing number of patients with MS who have or have had COVID-19 that are being reported on Twitter. The following are some of the relevant tweets. If you know of any other cases please let us know.

My two cases: 30-year-old male on interferon beta 1a and a 50-year-old female on fingolimod. They are completely recovered now!

— Paolo Preziosa (@paolopreziosa) March 21, 2020

Case of a 59 y/o female on Rituximab (last infusion 5 months ago) doing well after #covid19. #MSCOVID19 @GavinGiovannoni @drbarrysinger

— Marina Creed APRN, MSCN (@MarinaC_Dyb) March 17, 2020

I have had a patient Covid+ with tecfidera with mild symptoms and doing well. We didn't stop the treatment , the lymphocytes number was ok

— Celia Oreja-Guevara (@C_OrejaGuevara) March 21, 2020

Probable COVID-19 case on cladribine with lymphocytes 0.5. Full recovery at home without hospital admission. #MSCOVID19

— Dr Niall MacDougall (@dr_niall) March 20, 2020

I have one. 40yo women recently diagnosed with RRMS (had not yet received DMT). High fever, dry cough and shortness of breath due to bilateral neumonia. Grade 4 lymphopenia and elevated C-reactive protein in the blood. Treatment with Kaletra and Dolquine has been initiated.

— Susana Sainz de la Maza (@S_SainzdelaMaza) March 15, 2020

Case of a 59 y/o female on Rituximab (last infusion 5 months ago) doing well after #covid19. #MSCOVID19 @GavinGiovannoni @drbarrysinger

— Marina Creed APRN, MSCN (@MarinaC_Dyb) March 17, 2020

I just received good news from one #MS patient receiving s.c. Interferon beta 1a that recovered from #COVID2019! He just complained fever (<38) and mild cough for 4 days!! He is at home now completely asymptomatic

Great!! #MSCOVID19

— Paolo Preziosa (@paolopreziosa) March 18, 2020

in Rome we have one male patient positive to Coronavirus. Treated with Natalizumab (14 infusions done), actually just fever, under observation but not hospitalized. One positive female on DMF hospitalized due to fever and dyspnoea, good recovery in few days

— Giovanna Borriello (@GiovannaBorri19) March 17, 2020

Have one patient with ocrelizumab infected. Doing fine. Flu-like symptoms but doing well

— NeuroImmunology Club (@NeuroImmunology) March 15, 2020

Have one patient with ocrelizumab infected. Doing fine. Flu-like symptoms but doing well

— NeuroImmunology Club (@NeuroImmunology) March 15, 2020

CoI: multiple