Epub: Roessler et al. Specialized housing and transportation needs of adults with multiple sclerosis. Work. 2012 Jul 19.
Background: This study evaluated the specialized housing, transportation, and resource needs and barriers of adult MSers.
Methods: Information pertaining to barriers and barrier removal strategies related to housing and transportation issues for adults MSers was gathered as part of a national survey of a randomly selected and representative sample of 5082 MSers, in cooperation with affiliate chapters of the National Multiple Sclerosis Society (NMSS) and the North American Research Committee on Multiple Sclerosis (NARCOMS). A qualitative analysis of participants’ responses to questions addressing: (a) barriers to obtaining specialized housing and adapted transportation for individuals with MS, (b) factors contributing to maintenance of an independent lifestyle, and (c) information and referral resources pertinent to obtaining specialized housing and adapted transportation.
Results: The results provide the first assessment of these issues on a national scale and underscore the need for increased access to professional consultation, financial resources, and housing modification information and resources to enable persons with MS to obtain the specialized housing needed to maintain maximal independent lifestyles.
“Although this is a US study the results highlight the problems MSers have with accessing appropriate housing when they become disabled. This issue is very topical in the UK with the coalition government’s plans to cut disability benefits. In my opinion, MSers who live in the UK and Europe have it better than MSers in most other countries.”
“In the UK most of the problems in relation to housing that we see occur in cutting through the red tape to access services. Delays in obtaining appropriate housing or modifications to existing homes is the main source of frustration.”
“Are any of you having problems with housing?”