Survey results: sleep disorders screening

We need to get a grip on sleep disorders in MS; they are common. #MSBlog #MSResearch

“Thank you all for completing the sleep disorder survey that has been running on the blog since early April. The following is a precis of the results.”

Number of MSers respondents  = 146

Mean age (standard deviation) = 45 yrs (SD 9.9)
Youngest respondent  = 23 yrs
Oldest respondent = 63 yrs
Sex: females = 64% & males = 36%

Type of MS: CIS = 3%, RRMS = 67%, SPMS = 20% & PPMS = 10%

Proportion of MSers with symptoms suggestive of sleep apnea – a potentially serious disorder which causes you to stop breathing repeatedly, often hundreds of times in the night during your sleep = 71%

Proportion of MSers with symptoms suggestive of insomnia – a persistent inability to fall asleep or stay asleep = 64%

Proportion of MSers with symptoms suggestive of narcolepsy or daytime hypersomnolence  – a disorder characterized by uncontrollable sleep attacks during the day = 49%

Proportion of MSers with symptoms suggestive of periodic limb movement disorder uncontrollable leg or arm jerks during sleep or restless leg syndrome = 66%

“These results suggest that sleep disorders are very common in MS and need to be investigated. Poor sleep impacts massively on daytime functioning; it contributes to MS-related fatigue. If you score highly on these subscales of the screening questionnaire you should speak to your MS team. You may need to be investigated further.”

Disclaimer: These results are based on a sleep disorder screening questionnaire; the prevalence of of these disorders will be lower in real life. Screening questionnaires, by design, overestimate the prevalence of the disorders before further investigations are done to specifically diagnose the condition in question. 

2 thoughts on “Survey results: sleep disorders screening”

  1. Question(s) about bladder overactivity at night that results in you having to get up several times to pass urine are missing in the Sleep Disorder Screening Questionnaire.

  2. These easy throat exercises defeated the most stubborn snoring and sleep-apnea the very first night.
    By: Christian Goodman
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    I made the following short video to explain the exercises in more detail.
    They have helped thousands of people, so I hope you’ll give them a try.
    This short video explains the easy exercises in details. You can start using them within 10 minutes from now (right where you’re sitting) and treat your snoring as soon as tonight.

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