Healthcare professionals working in MS may find the MS Trust’s new web resource helpful #NeuroSpeak
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Health Professionals Web Resources
Here at the MS Trust we are always working to ensure that people with MS and the specialist health professionals who support them have access to up-to-date, relevant, accurate and useful information. Recently, we’ve been working with health professionals to look into the information resources currently used, and where there may be gaps. Many thanks to everyone who has been involved in this project and those who completed our survey.
A few topics emerged that professionals wanted more information on, so we decided to send a reminder about the resources we already provide in those areas. We believe the following resources will prove useful to MS health professionals, and support them in their professional development and in providing quality care to people with MS.
Writing an effective business case
We have recently updated a page on our website about capacity planning and writing a good business case, featuring highlights from our guide to writing an effective business case and our capacity planning tool, which are available in full on request.
Understanding commissioning and funding flows in MS services in England
This is a vastly complex subject, but can be hugely beneficial to understand when making a case for service improvement/development. We’ve created a straightforward, practical guide to funding flows in MS services in England.
Sharing examples of innovative practice
We have recently put together a resource for health professionals highlighting opportunities to implement change in MS services. Featured on this webpage are a number of examples of innovative practice from MS teams across the UK (and the opportunity to add to this list yourself) and suggestions for small steps you can implement to help take forward the action statements from MS Forward View.
Developing an effective, responsive and efficient relapse service
In the summer of 2016, we sent every MS nurse a copy of our guide Eight steps to improving your relapse service: a guide to best practice for MS specialist nurses, which explained relapses, discussed the clinical management of relapses, and set out our ‘eight steps’ needed to deliver an effective relapse service. We also hoped that this resource may be useful for other MS health professionals and GPs.
Auditing your service with a user survey
The MS Trust offers all UK MS nurse and therapist teams the chance to use this survey through a free service whereby we take away most of the work involved. By taking part, you will receive a valuable presentation giving evidence of the benefits of your service to patients along with service users’ experiences and suggestions for improvement.
Improving the efficiency of disease modifying drug provision
As part of MS Forward View, we looked at the DMD pathway in MS and investigated how capacity may be created in this area of MS care. This report provides a detailed explanation of the current workload associated with DMDs and how this impacts MS teams, models how this workload may develop in future and where capacity may be freed up in this pathway.
Improving services for people with advanced MS
Another area of MS services we looked at as part of MS Forward View was care for people with advanced MS. Recently, concerns have arisen that this was an aspect of care that was often difficult for teams to fully implement as demands on MS services in general continue to rise. This report outlines the findings of our work on this area, and our recommendations for how services can better meet the needs of people with advanced MS.
Other resources you may find useful
We hope you find these resources useful, let us know if you have feedback on any of them – we’re keen to hear what you think.
All the best,
Health Professionals Programme Team
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Perhaps the MS Trust can help create a document or resource 'What GP's need to know about MS'. If there is no such thing currently like this. It would be good for pwMS to have some input on this. I would be happy to hand deliver a pile of these leaflets to my local GP surgery.
We don't always see eye to eye and I am often critical when I feel you are defensive about what you can't do and recommend woolly things in place of what science can't offer (like mindfulness, doctors exercising so that they have a 'higher ground' and so on). but from time to time, i just want to unequivocally thank you for what you do. your interest (dare i say care, passion and commitment) are both exemplary and to be admired: and anecdotally, i hear that success is 99% persistence 🙂 and by definition, persistence can only be displayed in the context of the lack of then success…thank you. if you lived in our neck of the woods my partner would prolly seek you out.as it happens, my partner has found a neuro she gets along with, who works with her… and low and behold, reads your blog (i suspect he knows you personally and hangs out with you at your cdp fests, but that's neither here nor there).thank you your biggest contribution to my life has been an answer to a question i asked 18 months ago: what's the point to the 4 phenotypes. i asked many the same question and you are the only one who has answered and decided to stand by your answer. your answer matches my anecdotal experience down every step of the way.you give me hope in my general disillusion with all things neuro :)lol 🙂 (I feel that's become a bigger identifier of my identity than my old new, bozoforgot)
Thank you so much for the ms trust link. I am ambulant but 2 months post knee replacement, so did use nórdik poles to get my walking coordinated and to stimulate nerve bonding, my incontinence has ruined my life. I have severe urgency and have to wear pull up pads day and night, I can't wait to see the urologist next week. I have recently started Tecfidera as my neurologist saw new lesions on my spine. Thank you again.