New digital tools for MS clinical practice available on Neuro-Compass. #GuestPost #Neurospeak
I hope you are enjoying our flurry of guest posts? We are deliberately trying to increase the number; we know that you are bored of hearing the same-old stuff from us over-and-over again.
A few week’s ago I was introduced to Neuro-Compass a web-portal for HCPs working in the MS space. I was particularly impressed with the DMT Toolbox to help decision-making around DMTs in clinical practice. I have always wanted to create a tool like this for pwMS, but have not had the time. James Overell a colleague of mine, who works in Glasgow, led on the development of this particular feature of the portal. When I saw him at the UK MS Debating Society meeting a few weeks ago I extracted a guest post out of him for the blog.
James produced, or his team at Neuro-Compass, produced a fully formatted post with pictures, etc. in the form of a word document. To save time I have embedded the post as a PDF. If I had to reformat this using HTML, on blogger, it would have taken at least 30 minutes and probably longer. If you don’t mind reading guest posts as embedded documents we could use this format more often and increase the number of posts. I have also asked Professor David Bates, the chairman of the Neuro-Compass site to do a guest post as well to explain the aim of the site.
Please let us know what you think of the portal? Dr Overell has agreed to answer questions on the post for the next 7 days; so please keep him busy.
I hope you are enjoying our flurry of guest posts? We are deliberately trying to increase the number; we know that you are bored of hearing the same-old stuff from us over-and-over again.
A few week’s ago I was introduced to Neuro-Compass a web-portal for HCPs working in the MS space. I was particularly impressed with the DMT Toolbox to help decision-making around DMTs in clinical practice. I have always wanted to create a tool like this for pwMS, but have not had the time. James Overell a colleague of mine, who works in Glasgow, led on the development of this particular feature of the portal. When I saw him at the UK MS Debating Society meeting a few weeks ago I extracted a guest post out of him for the blog.
James produced, or his team at Neuro-Compass, produced a fully formatted post with pictures, etc. in the form of a word document. To save time I have embedded the post as a PDF. If I had to reformat this using HTML, on blogger, it would have taken at least 30 minutes and probably longer. If you don’t mind reading guest posts as embedded documents we could use this format more often and increase the number of posts. I have also asked Professor David Bates, the chairman of the Neuro-Compass site to do a guest post as well to explain the aim of the site.
Please let us know what you think of the portal? Dr Overell has agreed to answer questions on the post for the next 7 days; so please keep him busy.
CoI: multiple
Prof G a version of this tool for pwMS would be a great idea. It could be empowering for pwMS.
I agree! It's a pity the site has a firewall and is for HCPs only.
Totally agree – a version for pwMS would be great. The website is only for HCPs, but a tool like this would be really helpful. I'll get working on it!
Just noticed that the tool is sponsored by Biogen. Is there a danger that the recommendations will be biased towards their treatments?
I am told that Biogen are hands-off. The tool is just a summary of the data that in the SmPCs (summary of product characteristics). But I agree you need to keep this in the back of your mind when using the tool. You also begin to realise that most educational tools out there are industry funded.
Biogen are completely hands off, but the funding does come from them at present. We are trying very hard to get other companies involved. The information in the tool, though, is factual – just from SmPC and pivotal published clinical trials.
Does Pharma sponsor your site?
No. You may be interested in the following posts that explain our position in more detail. http://multiple-sclerosis-research.blogspot.com/2015/06/monetising-blog.htmlhttp://multiple-sclerosis-research.blogspot.com/2016/05/crowdspeak-blog-administrator-charity.html
"I hope you are enjoying our flurry of guest posts?"PLEASE don't repeat what happened last time there was a ton of posts happening… pulling the plug on the blog is like destroying my visual nerves, not nice :-\
I agree. MD in particular is posting too much again, he must be in a manic phase. Less quantity more quality is what is needed.
Look after your Mojo we need it ;-)http://multiple-sclerosis-research.blogspot.com/2016/05/were-redefining-our-mojo.html
Why did this degenerate into a bash MD thread? I enjoy his postings. Not totally cool either to make a mental health joke.
Anonymous 8:21 who said we have to read everything? some topics would be interesting to you, some to me, some to nobody – the choice of what and what not to read is yours :-).