Teaching MSers how to Fish

Did you know that CEO actually stands for Chief Energy Officer?

What am I going to do with my energy?

I am going to help set-up a programme to teach MSers how to fish! 

My wife, who has had many subtle influences on my life, is a successful CEO with many leadership qualities I admire. One of them is that she views her role as the CEO of her charity as being that of the Chief Energy Officer. She keeps telling me that my role is to create the necessary energy and to inspire people to make change happen and to take control.

One my resolutions this year is to be just that a Chief Energy Officer and to drive our #ThinkSocial campaign as hard and hopefully as fast as possible. I want to change the way we manage MS in the NHS and to make this happen we need to activate the MS community, in particular, pwMS. Central to this vision is creating a patient activation programme similar to what the type 1 diabetes community have done with their DAFNE programme (Dose Adjustment For Normal Eating).

To make sure any programme we launch is adopted and used we need to involve important stakeholders. This is why we are partnering with Shift.ms to take this forward. We need to make sure we go beyond ‘patient engagement’ and really empower pwMS to give them control of their own disease. 

Some of you may have heard about ‘Altogether Better Health Champions‘, which is transforming care in the community. At the core of this programme is social capital and how becoming a health champion not only expands your own social capital but that of the wider community. Can we model our #PatientActivation programme on the ‘Altogether Better Health Champions’ and achieve the same effect?
We have provisionally called the programme ‘Teaching MSers how to Fish’. This title is based on the teachings of Lao Tzu, the Chinese philosopher and founder of Taoism, who said “Give a man a fish and you feed him for a day. Teach him how to fish and you feed him for a lifetime”.

We are in the process of putting together a grant application to get this project off the ground. We are looking for ideas and volunteers. Don’t be shy. 

Happy New Year and please #ThinkSocial!

CoI: multiple

2 thoughts on “Teaching MSers how to Fish”

  1. Great idea. I think this is something that is missing in the NHS. As patients we tend to be very passive accepting what is dished-up.

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