Do you think we should celebrate MS heroes (MS’ers who are special) on this blog?
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“This survey may yet prove to be contentious, but heroes often make us see the world differently. Seeing things differently is something we have to do if we have MS or are close to people with MS.”
“Please let us know how you feel about this issue.”
Every person living with MS is a hero. The challenges faced and the resilience required make heroes of all of us.
I wouldn't be comfortable with this. Who defines what a hero is? I struggle to work to support my family. I never scream or shout in front of them about this cruel disease. Am I a hero? no – just dealing with a disease which the medical profession can offer little help. One day death will be a better option than living with this disease – I'm sure I won't be regarded as a hero then. We all respond in our own ways and to highlight a specific response as heroic is an insult to the others.
I'd like to put myself forward. I paid stacks of tax when I worked yet when I see my neuro (getting a good salary paid by the taxpayer)about my PPMS he says there's nothing he can offer. I should punch him on the nose for failing me, but I don't.
In a nutshell – NO.To difficult to define or measure.By selecting MSers who happen to get publicity, you are doing a dis-service to those who suffer in silence e.g. Mum's bringing up babies.
Anyone living with this diagnosis is special. The thing we all want is to be well again. Only the MS researchers can deliver this. The researcher who delivers will be the real hero in my book.
As "others" have said, the definition of "hero" is all important here. If this ends up as just "another prize for one of the 'in'crowd" I think that (at best) it will be "ignored" and demoralising (at worse).
This is the most difficult thing question so far."Charles has maintained his quality of life; remarried, written books, held photographic exhibitions, etc" can sound like "Why can't you be like Charles Fox?", which is a very, very cruel question.On the other hand, his life (and that of others like him) can be an inspiration on how to deal with MS and a source of ideas for things to do.
I don't know Charles but admire his achievements. However, our individual circumstances may be very different. I saw the video of Charles and his home / surroundings looked great. I'm stuck in a wheelchair in a council flat in Birmingham and just scraping by on state handouts. Apart from phoning the police when I heard a break-in upstairs, opportunities to show heroism are few and far between.
I'd prefer the blog to focus on research and treatments in the pipeline. I need hope for the future – hope that within 5 years some treatments can impact on progression and within 10 years some treatments which can encourage repair. I don't need heroes just hope for better treatments.
There is a natural tendency for organizations to want to branch out into this area, but please don't. Like another commenter said, everyone with MS is a "hero" finding ways to live with the struggles and the fear. It's silly to try to quantify who is more of a hero. We love you guys for the science. That's also what we don't get elsewhere.
We all need heroes, these are people who we respect and maybe try to emulate in one way or another. If they happen to have MS all well and good, but its not so good for them. What we must not do is make some one a hero just because they have MS
We all need heroes, these are people who we respect and maybe try to emulate in one way or another. If they happen to have MS all well and good, but its not so good for them. What we must not do is make some one a hero just because they have MS
We all need heroes, these are people who we respect and maybe try to emulate in one way or another. If they happen to have MS all well and good, but its not so good for them. What we must not do is make some one a hero just because they have MS